
The last time I blogged, it was about autumn. Now, it is spring and as the snowdrops are fading away, the crocuses and daffodils have taken over. Christmas has been and gone; already a hazy memory and, as the days start to get ever longer, the birds are beginning to build their nests and the promise of new life beckons.
We have had snow here, like many places this winter but, apart from that, winter has been a long one for me. Scleroderma has chosen not to be kind to me lately and I have suffered from digital ulcers like never before. My only pain relief has been morphine and I have been numbed down and out of it for a few months now. I don’t think I suffer from depression, but I have been down with zero energy and vast amounts of lethargy. When this happens, all I want to do is sleep or gaze out of the window at the trees.
Ever since I can remember, I have had a fascination of trees. I marvel at their ability to live so long, when we are here for just a fraction of time in comparison. I love the different varieties; their colours, sizes, blossoms, fruits and texture of bark. We are fortunate here that from every single window of our cottage, we can see trees: trees of all descriptions – oak, perry pear, hazel, silver birch, elder, ash, copper beech, apple and plum trees, plus a huge eucalyptus tree right at the bottom of the garden, with its amazing peeling bark. When my nephew and niece come to stay, we write secret messages on the bark and lay a treasure trail around the garden. We have had magical moments doing this, but they grow all too quickly and will soon rather sunbathe, listening to their IPods instead.
My “therapy” is my tree gazing. I have long since learnt to listen to my body when it is not firing on all cylinders, and so our trees have listened to my misery and pain and ever so gently, kicked me up the bum and nudged me back on course. They have turned a blind eye to my attire (I have been unable to do zips and buttons for over 2 months) as I have slobbed around in pull up trousers and sweatshirts. And now they are teasing me to want to go outside and do some gardening, but it has turned too cold for me again and I have to content myself with making plans and drawing up planting maps for my raised vegetable beds.
At least now I can type again! I am VERY slow and my fingers are clumsy, but I get there in the end. I am healing daily as the spring advances and there is a hint of warmth to the sun (not today, though!). I will never be fully “well” or cured, but I always get my equilibrium back – this winter has been harder to get through but I received good news that my funding has been granted for the drug “Bosentan” last month. I was in hospital having my Iloprost infusion (to try and kick start the healing of my ulcer) when my letter came and that was the icing on the cake. I participated in the drug trial for Bosentan and afterwards was given the drug for a 12 month period, free of charge by the drug company. This was 2 years ago and for the last year without the drug, my ulcers have been very spiteful. Bosentan doesn’t stop the ulcers coming completely, but makes them heal much faster. It is also used by sufferers of pulmonary hypertension but, fortunately, my “type” of Scleroderma means I am less likely to have this. So, enough! I have my little pills once more, my ulcer is shrinking slowly and I am feeling stacks better. Life is pretty darned good and I am back in the frame of mind to realise it.
It is growing dusk now and I am off to put the chickens to bed. Our ex battery hens have settled in wonderfully and are keeping us in more eggs than we can eat. Neighbours and friends are enjoying the eggs too and come to see them grubbing around in the dirt. They are such characters and so friendly – you only have to walk towards their gate and they come running to see what presents they have. Their favourite is mash potato, but they love rice, bread, veg peelings, chips (!), grapes, apples, strawberries and pasta. They love being picked up and stroked and the kids love to go and fetch the eggs when they come to stay. It couldn’t have worked out better – they give us so much amusement and we give them love and a safe environment.
So, until another time (not so long, I hope) – wellies, body warmer and gloves are to be donned before I venture into the cold air to close that pop hole! xx